Digital marketplace to discover and connect with university technology transfer (commercialization), licensable scholarly resources, and other intellectual property.
- Project Direction - Technical Project Management - Public Speaking and Writing - Business Models -
Creating a movement to address the world's biggest challenges through increased digital metadata richness for scholarly outputs.
- Project Direction - Building Community - Volunteer Management - Public Speaking and Writing -
I, myself, am a student of Indian dialects. Are you? Do you know Colonel Pickering, the author of Spoken Sanskrit? I am Colonel Pickering. Who are you? I’m Henry Higgins, author of Higgins’ Universal Alphabet. I came from India to meet you! I was going to India to meet you! My Fair Lady (film), 1964 Much of the way that science (and many other fields) is conducted and evaluated today is heavily influenced by the foundations established in Europe during the Scientific Revolution in the 1600s.
PANEL: The Role of Scientific Publishing in Supporting D&I Discussions about publishing are nearly ubiquitous in any scientific scholarship journey. This important activity impacts how research is reviewed and valued, and can affect if and how this research is built upon. In this panel, moderated by Laura Paglione, Partner at Spherical Cow Group, featuring Marcus Lambert, Associate Vice President for Research Strategy & Operations and Associate Professor in the School of Public Health at SUNY Downstate Health Sciences University, and Caeul Lim, Scientific Editor/Inclusion & Diversity Officer, Cell Press, we will explore the role of scientific publishing in supporting D&I and its incorporation into research’s collective goals to build knowledge, progress, and societal benefit.
Through a collaboration with Laure Haak and Heather Flanagan, we explored case studies related to building trust in community-led efforts, including the key components in fueling adoption and use. I was an equal author contributor in this work. Trust is a core component of collaboration. Trust is a local phenomenon, and scientific research is a global collaborative, its impact multiplied through open exchange, communication and mobility of people and information. Given the diversity of participants, local policies and cultures, how can trust be established in and between research communities?
I was a contributor to this work and am recognized as an author on the related publication. The Global Alliance for Genomics and Health (GA4GH) aims to accelerate biomedical advances by enabling the responsible sharing of clinical and genomic data through both harmonized data aggregation and federated approaches. The decreasing cost of genomic sequencing (along with other genome-wide molecular assays) and increasing evidence of its clinical utility will soon drive the generation of sequence data from tens of millions of humans, with increasing levels of diversity.
I was a contributor to this work and am recognized as an author on the related publication. Human biomedical datasets that are critical for research and clinical studies to benefit human health also often contain sensitive or potentially identifying information of individual participants. Thus, care must be taken when they are processed and made available to comply with ethical and regulatory frameworks and informed consent data conditions. To enable and streamline data access for these biomedical datasets, the Global Alliance for Genomics and Health (GA4GH) Data Use and Researcher Identities (DURI) work stream developed and approved the Data Use Ontology (DUO) standard.
The EDI Advisory Group announced the launch of the Onboarding initiative, after a successful pilot program that paired four newcomers with four Work Stream Guides. Next, the team shared results from an EDI survey this year, which revealed that more than 50% of respondents were not as involved in GA4GH as they wanted to be. These individuals felt that a lack of time and support impeded their ability to engage with the community.
In 2021, the population lifecycle management tool, COmanage Registry, released version 4.0. This major release contains many new features such as queue-based provisioning, MFA enrollment manager, identity documents for supporting identity proofing, boolean logic for nested groups, and more. In addition, we will share the latest about the long-anticipated COmanage Match system. COmanage Match can be used with Registry or independently to integrate with other campus identity systems to provide a heuristic-based system for matching identity records across multiple authoritative systems of record.
During the GA4GH 9th Plenary meeting in September 2021, I discussed the current progress of the GA4GH Equity, Diversity & Inclusion Advisory Group, a group that I co-chair. Through deep exploration using an approach to build an “intentional community”, the volunteer group has embarked on three overarching projects: Onboarding Tactics, Increasing Participation Levels, and Building Equity by Design into our standards. This talk describes the progress to date, and encourages the community to get involved and contribute to EDI efforts to effect change.
WEBINAR: Negotiating Open Metadata into your Contracts Contract negotiations are important tools for incentivizing publishers and vendors to move to more open business models. Researchers and research institutions have been working together to best plan for and accomplish this shared vision. As part of this transformative process, open metadata must be included to ensure broad access to scholarly resources and other research outputs. As part of Metadata 20/20’s “Your Turn” campaign, the community has expressed interest in exploring and sharing how open metadata can be negotiated into contract language for those accessing and using scholarly resources and other research outputs.
The Long and Winding Road: Sometimes the best path from point A to point B is not a straight line. Follow the twists and turns of one alumna’s career through 8 very different industries and 7 unique functional roles into the position she feels she was always meant to play. At the 2021 LeadHERship Conference at Stevens Institute of Technology in Hoboken, NJ, USA, I presented an interactive talk about how to make career transitions when you are pursuing a non-linear career.
This presentation describes the role of Identity and Access Management (IAM), contrasts the unique needs for IAM in higher education with those for enterprise systems, and highlights the role that a federation like InCommon provides in fulfilling the these special needs. The goal of this presentation is to provide context for the presentations and materials that will follow during this kickoff workshop. PRESENTATION SLIDES: Orientation: IAM & InCommon Paglione, Laura.
This presentation describes the purpose of identity registration, its role in identity and access management, and specific features of tools that assist in identity registration. It was presented as an invited talk at the BaseCAMP Workshop in July 2021. BaseCAMP is a workshop hosted by InCommon for those new to identity and access management, new to InCommon, or both. PRESENTATION RECORDING: Identity Registration 201 Available only to conference participants.
What do researchers, publishers, librarians, and data repository managers understand about the role of metadata in their work? Metadata is descriptive information about research resources themselves, and it provides important insights for discovering new knowledge, organizing resources, and understanding who the experts are in any field. In this comprehensive study, these constituents responded to a survey to reveal their awareness, knowledge and use of metadata. The results were analyzed and published in the peer reviewed academic journal, Quantitative Science Studies by MIT Press.
In 2015, the United Nations General Assembly put forth 17 goals to “transform our world”. These goals aim to tackle the big, important problems facing society. Scholarly research is critical to ensuring our collective response is timely and enduring. Open metadata is the foundational infrastructure that fuels innovation and ensures that research is available, relevant, and used by everyone who needs it. Connected metadata bridges the gaps between systems and communities.
WANTED: PID for an object that is not too big and not too small. One that provides just the information that I seek, and is in a language that I can understand. Not too old. Accompanied by data and resources. Available in my country. Open access only need apply. What would a PID be without its accompanying metadata? Rich data help fulfill the FAIR promises by making information more easily findable, and by providing clarity on the constraints around being accessible (how?
Genomics data offers enormous hope of tackling our world’s toughest health challenges. But we can’t successfully carry out our critical work of defining technical and ethical standards for genomics data without first building a diverse “intentional community” committed to inclusivity. At the GA4GH 8th Plenary I was invited to give a keynote talk about this topic. listen time: 30 min. KEYNOTE: GA4GH 8th Plenary Building an Intentional Community for Standards Development
Broad diversity in the community that makes standards and policies ensures that the standards will work for all that we seek to include. Yes, gender and race diversity, but also region, industry, background, viewpoint, and approach. And when we’re talking about standards for genomics data sharing, that diversity is essential for inclusion of information that can benefit the entirety of human-kind. It was so much fun to be interviewed for the the OmicsXchange podcast this month in my role as the chair of the Global Alliance for Genomics and Health Equity, Diversity and Inclusion group.
I am honored and excited about being featured in the LinkedIn article series by Heather Flanagan of Spherical Cow Consulting, “What’s it like to be…”. Making the decision to become an independent consultant was a scary one when I took the leap in late 2018. It was great to reflect on that decision and consider how things have gone so far during this interview with Heather. You can read the full interview in LinkedIn:
Transparency is essential to trust and efficiency in research. In light of SARS-CoV-2 and COVID-19, there has been increasing discussion about the importance of past and evolving research related to the virus and disease. Ensuring researchers have access to past data and findings that may provide insights is urgent and important, and fortunately is getting some attention with efforts like LitCovid, an open-resource literature hub for COVID scholarship. Despite this encouraging development, it is important that we don’t lose sight of the importance of research transparency in reinforcing the goals of efficiency, efficacy, and long-term trust in biomedical research.
In 2020, FORCE11 created a year-long blog series about scholarly infrastructure. Force11 is a community of scholars, librarians, archivists, publishers and research funders that grew organically to help facilitate the change toward improved knowledge creation and sharing. There goal is to create a change in modern scholarly communications through the effective use of information technology. In March, in my role as Project Upholder of Metadata 2020, I chatted with Jennifer Kemp about the importance of metadata, the lifeblood of this infrastructure, a ubiquitous and foundational component of scholarly communications.